I guess it’s been a few days. I guess that’s what happens when life gets busy. I feel like I complain a lot about not ever having enough time but then something happens and I have even less time. I guess that’s the nature of life. Experiences that are constantly teaching you that you don’t really know Jack about life.
As of today my mom has been in the hospital for 10 days and she’s probably got 3 or 4 to go. I’m the designated visitor (at the Med Center you can only have one) and I’ve been to see her everyday. It’s fine, but I’m kinda tired of my new routine and am really looking forward to her discharge.
She is making good progress improving but still needs so much help from the staff I can see that after discharge is when the real work will begin for those of us who will be her home care team. At least once she gets home she can have as many visitors as she wants. And I’m sure I’ll be able to get a break when my youngest sister comes home to help.
My brother has made no mention of trying to come home for anything. I might be harboring some resentment towards him for that. But whatever.
In embracing my new routine I’ve had no problem letting go of a few of the household tasks I typically have high standards for. I’m letting the kitchen go a little and litter boxes don’t need scooping daily. The cats will live. And if the other humans don’t like it, they can do something about it their damn selves.
It’s Sunday and I spent some time checking my stats though I suppose that’s another thing I have let go thinking about most of the week. I didn’t write anything in my planner and there have been no to-do lists so the only stats I can collect are those from my FitBit and phone.
My exercise is solid and sleep has been average thanks to the Trazidone. My new screen time goals feel unachievable and it’s not the social media interaction that’s the problem.. it’s text messaging. And that’s kind of unavoidable. However, I might do a full court press on that after my mom gets discharged.
She “sat me down” yesterday to tell me that she’s decided to fight the cancer and wants to see her life extend beyond this next year. This might seem like a no-brainer but for her it’s counter to what she’s always thought about decisions like this.
For years she’s said that if she got this old she wouldn’t put herself through any extensive life saving measures. That she would just let go and let whatever it is take her naturally. I know this because she’s told all of us that several times, especially after watching her own mom pass away.
This issue, though, came on so suddenly and she was in so much pain that she just went along with what the doctors and hospitals were doing and telling her she needed. She said she was caught between a rock and hard place and didn’t really have a choice. Now that her primary pain causing issue is on the mend, she’s facing a different predicament and 6 months of chemo and more surgery.
The way she sees it is that she does have more of a choice now. She can just go home and let the cancer spread and take her or she can fight it. So the conversation yesterday with her decision to fight is a big deal to her.
I told her years ago I would support any decisions she would make. I still do. I haven’t verbally said that lately because I didn’t want that to influence her in any way. I mean, I can’t imagine saying to her now “if you want to die, I’m ok with that.” It’s got to be her decision alone.
Instead of verbalizing my support of her decision I’ve just been trying to remind her of all the things she loves about life. And when she started talking about traveling and putting her toes in sand and doing things like walking out in the rain, I’ve been encouraging her.
I might have even promised to take her to New York City. The Universe only knows if that will ever come to pass, but if it kept her thinking about living instead of dying, that’s ok.
If I’m being honest, I don’t know if there’s anything that can repair how I feel about our relationship or her. I’ve lived my entire life feeling like my parents did a crappy job at being parents. I’ve held a lot of resentment towards both of them about how alone and invisible I was as a kid. I feel like my moms part in that was because she’s so selfish and made so many selfish choices. Some of which had a direct hand in the trajectory of my adult life.
I suppose that’s what makes her current “demanding” behavior harder to take. She’s particular and begun taking really well to the attention and immediate reactions to her “calls.” Those poor nurses probably can’t wait until she gets discharged either.
Most of what I’m doing I’m definitely doing out of obligation and my desire to “do the right things.” Of course I can’t tell her how I really feel. Not while she’s contemplating living or dying.
I’m not sure how this will play out or if the extra time I spend with her can heal my old wounds. I really doubt it. I just keep thinking it will all get easier when my sister comes home. We’ll see.
I’ve been walking about an hour and have to get going with all the Sunday things.
With peace and love,